New Phone-In for Group Facilitators

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Hearing Voices Network USA is happy to announce a new phone-in mutual support group for people who are currently facilitating Hearing Voices groups and for those interested in starting new Hearing Voices groups. This group is happening once-a-month via toll free conference call. Like other Hearing Voices groups, it’s a place to share our stories, challenges and victories, to gain new perspectives and connect with others who may have similar experiences.

When?

First Friday of each Month

3pm-4pm Eastern Time

Email Caroline White for more info: caroline@westernmassrlc.org

Online Training for Hearing Voices

5117230-1x1-700x700Rachel Waddingham is launching a series of online training courses on hearing voices, aimed specifically at people who live outside of the UK or find it difficult to fit full day courses into their busy lives. Each course consists of 4 x 1 week modules, videos and online access to a learning area. The first two courses will be:

Introductory offer: £24 (full) and £15 (concessions – including unwaged and minimum waged).

For more information about the each course and to book a place, please click on the above links. For Frequently Asked Questions about Rachel’s online courses, please visit the relevant section of her website Behind the Label.

The first online courses will start on 4 January 2016. Early booking is advised.

Hearing voices: The people who say talking back is the only answer

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Excellent article on several people’s experiences with voice-hearing was published by Australia News this week. You can read the full article here.

“one important element of the hearing voices approach is ‘voice dialogue’ — trying to change your relationship with the voices. “It’s like being in a bad relationship, You have two options, put up with it and distract yourself with an affair, or work on the relationship. If you realise you can do something, you’re not a victim of a broken brain, as many have been told. If meaning is given to you by someone else, you stop looking to make your own sense of things.

 

 

 

Podcast on Voices & Visions

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Australia’s ABC Radio has a new 2-part podcast on voices and visions! Here’s what they say:

“The phenomenon of hearing voices might not be as unusual as we think, and many people even live quite happily with the voices they hear. Sometimes the voices have helpful advice and at other times they offer a type of command. So where do these voices come from and did some of the world’s faiths begin with hearing voices? Is it a mental illness or other worldly communication, dictating a destiny?”

Debra Lampshire: Two NYC Workshops

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Debra Lampshire:  Voice Hearer, Educator, & Researcher is coming to NYC for two workshops

Debra Lampshire has transferred her 30 years of the lived experience of recovery, voice hearing and the shared experiences of the consumers she has worked with into a wealth of knowledge that is collaborative, interactive and empowering. She is a prominent leader and mentor to others within the service-user and clinical movement in New Zealand and a well know trainer, educator and advocate within national and international mental health services. She is the current Chairperson for ISPS New Zealand and held the position of Consumer Consultant to Auckland District Health Board (ADHB) for five years. She is currently a Project Manager for ADHB’s Psychological Interventions for Enduring Mental Illness Project. In this unique and innovative position, Debra works in a clinical setting, leading the development of psychological strategies for positive symptoms of psychosis, and is the first non-clinician to do so. Debra is also a professional teaching fellow with The University of Auckland’s Centre for Mental Health Research and Policy Development, where she holds both an academic and research role. Her work has been presented as keynotes and workshops/symposia at numerous conferences both nationally and internationally.

(1) ISPS-US is sponsoring a full day workshop at the A.R.E. Center in midtown Manhattan on Tuesday September 29th from 10 am to 4 pm. Cost $25 to $100, see registration for details.

http://tinyurl.com/oxdu67y

In this workshop, Ms. Lampshire will use her own experience, discuss her research, and engage with participants in experiential exercises with participants. The following topics will be addressed:

 

  1. What does it mean for a voice hearer to be in recovery?
  2. What is the role of empowerment in this recovery?
  3. What do mental health professionals need to learn from voice-hearers?
  4. What are the implications of the Hearing Voices Network paragdigm for the mental health system?

This workshop is appropriate for voice-hearers and their families/allies, students, peers, advocates and mental health professionals.

(2) FREE Hearing Voices NYC event, Friday evening September 25 from 6 pm to 8 pm.

TAKING BACK YOUR LIFE: Stand Up & Start Up!

In this talk Debra Lampshire, who spent decades institutionalized and who now gives lectures to mental health professionals regarding recovery, will discuss how she  overcomes the  fear of asserting herself, how to  feel confident and capable regarding  starting & leading  groups. For those who are feeling anxious, uncertain or who fear stepping up to the plate to start an HVN or other group, this meeting will be sure to inspire. This meeting is free to all.

Location: Jefferson Market Library

425 Avenue of the Americas (6th Ave) between 9-10th Streets

New York , NY 10011

Take A, B, C, D, E, F to West 4th Street or 1, 2, 3 to 14th St, F to 14th, L to 6th Ave, 4, 5 to 14 th St-Union Square or 6 to Astor Place

NO NEED TO REGISTER. JUST SHOW UP!!

Open Letter to Huffington Post

The Bay Area Hearing Voices Board wrote the following letter in response to a Huffington Press post criticizing the HVN by Canadian parent advocate Susan Inman.  Multiple organizations and individuals have signed on, including Hearing Voices Network NYC. If you want to sign it too, contact the Bay Area HVN group herebay-area.
……………………………………………………….

Dear Editors,

We write to express our concern and misgivings about Susan Inman’s recent post (“What You’re Not Hearing About the Hearing Voices Movement”). Ms. Inman has profoundly mischaracterized hearing voices networks (HVNs) and also demonstrates a troubling lack of understanding of the empirical literature on psychosis, optimal psychosocial intervention and recovery.

We–the Bay Area Hearing Voices Network (BAHVN)–are a regional HVN that includes peers, family members, clinicians, and researchers.  Many of the peers who attend our groups (and the loved ones of affiliated family members) take–and benefit from–antipsychotic medications. Many of us have also struggled (personally or within our families) with very “severe” and disabling forms of psychosis and are no strangers to the enormous challenges involved.  Instead it is precisely in response to the enormity of these challenges that we undertake the work we do.  Our goal is not to challenge psychiatry, but rather to create spaces in which dialogue is possible, and in which the personal meaning of psychotic experiences (and their social and cultural contexts) are centered.

There is no sense in which the mission of our group (or any regional or national HVN, to our knowledge) is to discourage medication use; instead we emphatically stress the highly individual nature of voices and psychosis and the importance of both peers and family members exploring what works for them.  Medications are only one possible aid in an evidence-based and evidence-informed toolbox that includes peer support, psychosocial rehabilitation, community reintegration and an array of therapies (including mindfulness and compassion-focused therapy for voices; Thomas et al., 2014). An open access special issue of Schizophrenia Bulletin (the leading schizophrenia research journal) published last year, covers many of these issues including a review of psychosocial approaches to auditory hallucinations, a paper on distinct voice sub-typesauditory hallucinations in both with and without a need for care and a peer-reviewed overview of the hearing voices network approach.

Turning to the scientific literature more broadly, Ms. Inman’s post appears largely ignorant of research on voices and psychosis over the past two decades.  Socioenvironmental causes and contributories are well-documented, including childhood sexual trauma and bereavement (Bebbington et al., 2011; Bentall & Fernyhough, 2008; Kirkbride et al., 2014; Matheson et al., 2013; Varese et al., 2012).  Leading biomedical researchers have repeatedly underscored that “schizophrenia” is a misleading term implies a false unity of multiple, etiologically distinct, “psychoses” (Keshavan et al., 2013). Voices (or auditory verbal hallucinations) are found at high rates across diagnoses, including major depression, PTSD and DID.  Estimates of voice hearing  in the healthy (non-clinical) general population range from 5-15% (Beavan et al., 2013).  In reviewing Marius Romme’s research, Ms. Inman decontextualizes a body of work that has largely focused on the range of voices (or auditory hallucinations) occurring outside the schizophrenia spectrum and within healthy populations, at present a large and active area of research for many scientists and epidemiologists (see the work of the International Consortium on Hallucination Research).

Clinical researchers and stigma experts have amply demonstrated that “biomedical” explanations of schizophrenia increase (rather than alleviate) stigma, for instance exacerbating the general public’s belief that people with schizophrenia are “dangerous” and decreasing the hope and self-esteem of peers (Angermeyer et al., 2013, 2014; Kvaale et al., 2013ab; Schomerus et al., 2012).  A recent study suggests that individuals who endorse a biomedical view of their experiences are also significantly less likely to benefit from cognitive behavioral therapy, currently the front-line evidence-based therapy for psychosis in Canada, the US and the UK (Freeman et al., 2013).

Research attesting to the importance of engaging with and integrating the symptoms and experiences of psychosis with one’s identity and sense of self (“integrating” versus “sealing off”) goes back to the 1970s and has continued up to the present (McGlashan et al., 1975; Thompson et al, 2003; de Jager et al., 2015).  Decades of work on factors involved in recovery attest to the importance of peer relationships, sense of belonging, and the active exploration of the impact of one’s symptoms on one’s life (e.g. Sells et al., 2003; Davidson et al., 2008).

Finally, Ms Inman’s use of “evidence based practices” concerns us.  The “evidence base” is constantly evolving and new interventions (that do not yet have evidence behind them) are continuously piloted and evaluated.  Current treatments fail many.  Antipsychotic medications are only partially effective or ineffective for a large percentage of persons diagnosed with schizophrenia (this is not a controversial claim); likewise the long-term impact of evidence-based strategies such as early intervention for psychosis remain inadequate. Ten year follow-up data for the important OPUS trial of early intervention, for example, found no difference between participants and controls provided treatment as usual in employment, education, or marital status after ten years; the vast majority of individuals across groups were unemployed and struggling; Secher et al., 2014).  Even “good responders” to medications all too often do not recovery socially–i.e. in the sense of employment or community integration–without psychosocial supports and social intervention (Morgan et al., 2014).

As any scientist would agree–and certainly those of us intimately affected by psychosis–we must continually innovate, test new strategies and interventions and provide hope and support to both peers and family members.

We encourage Ms Inman (and everyone) to join us in respectful dialogue, and to critically and objectively read and engage with lived experience, clinical experience and the research literature.

The Board of the Bay Area Hearing Voices Network

Co-signatories:
Dirk Corstens MD on behalf of the InterVoice Board
Ron Coleman & Karen Taylor, Working to Recovery
Hearing Voices Network–New York City
Chicago Hearing Voices
NAMI Pennsylvania Montgomery County
Dr. Cherise Rosen, Department of Psychiatry, University of Illinois at Chicago
Dr. Sarah Keedy, Department of Psychiatry, University of Chicago
Dr. Neil Thomas, Senior Lecturer in Psychology, Swinburne University & Director, 
Voices Clinic at Monash Alfred Psychiatry Research Centre

References
Angermeyer, M. C., Daubmann, A., Wegscheider, K., Mnich, E., & Schomerus, G. (2014). The relationship         between biogenetic attributions and desire for social distance from persons with schizophrenia and major depression revisited. Epidemiology and Psychiatric Sciences, 1-7.

Bebbington, P., Jonas, S., Kuipers, E., King, M., Cooper, C., Brugha, T., … & Jenkins, R. (2011). Childhood sexual abuse and psychosis: data from a cross-sectional national psychiatric survey in England. The British Journal of Psychiatry, 199(1), 29-37.

Bentall, R. P., & Fernyhough, C. (2008). Social predictors of psychotic experiences: specificity and psychological mechanisms. Schizophrenia Bulletin, 34(6), 1012-1020.

Corstens, D., Longden, E., McCarthy-Jones, S., Waddingham, R., & Thomas, N. (2014). Emerging perspectives from the Hearing Voices Movement: implications for research and practice. Schizophrenia Bulletin, 40(Suppl 4), S285-S294.

Davidson, L., Schmutte, T., Dinzeo, T., & Andres-Hyman, R. (2008). Remission and recovery in schizophrenia: practitioner and patient perspectives. Schizophrenia Bulletin, 34(1), 5-8.

de Jager, A., Rhodes, P., Beavan, V., Holmes, D., McCabe, K., Thomas, N., … & Hayward, M. (2015). Investigating the Lived Experience of Recovery in People Who Hear Voices. Qualitative Health Research, 1049732315581602.

Freeman, D., Dunn, G., Garety, P., Weinman, J., Kuipers, E., Fowler, D., … & Bebbington, P. (2013). Patients’ beliefs about the causes, persistence and control of psychotic experiences predict take-up of effective cognitive behaviour therapy for psychosis. Psychological Medicine, 43(02), 269-277.

Keshavan, M. S., Clementz, B. A., Pearlson, G. D., Sweeney, J. A., & Tamminga, C. A. (2013). Reimagining psychoses: an agnostic approach to diagnosis. Schizophrenia Research, 146(1), 10-16.

Kirkbride, J. B., Jones, P. B., Ullrich, S., & Coid, J. W. (2012). Social deprivation, inequality, and the neighborhood-level incidence of psychotic syndromes in East London. Schizophrenia Bulletin, sbs151.

Kvaale, E. P., Gottdiener, W. H., & Haslam, N. (2013). Biogenetic explanations and stigma: A meta-analytic review of associations among laypeople. Social Science & Medicine, 9695-103.

Kvaale, E. P., Haslam, N., & Gottdiener, W. H. (2013). The ‘side effects’ of medicalization: A meta-analytic review of how biogenetic explanations affect stigma. Clinical Psychology Review, 33(6), 782-794.

Matheson, S. L., Shepherd, A. M., Pinchbeck, R. M., Laurens, K. R., & Carr, V. J. (2013). Childhood adversity in schizophrenia: a systematic meta-analysis. Psychological Medicine, 43(02), 225-238.

McCarthy-Jones, S., Thomas, N., Strauss, C., Dodgson, G., Jones, N., Woods, A., … & Sommer, I. (2014). Better than mermaids and stray dogs? Subtyping auditory verbal hallucinations and its implications for research and practice. Schizophrenia Bulletin., 40(Suppl 4), S275-S284.

McGlashan, T. H., Levy, S. T., & Carpenter, W. T. (1975). Integration and sealing over: clinically distinct recovery styles from schizophrenia. Archives of General Psychiatry, 32(10), 1269-1272.

Morgan, C., Lappin, J., Heslin, M., Donoghue, K., Lomas, B., Reininghaus, U., … & Dazzan, P. (2014). Reappraising the long-term course and outcome of psychotic disorders: the AESOP-10 study. Psychological Medicine, 44(13), 2713-2726.

Schomerus, G., Schwahn, C., Holzinger, A., Corrigan, P. W., Grabe, H. J., Carta, M. G., & Angermeyer, M. C. (2012). Evolution of public attitudes about mental illness: a systematic review and meta‐analysis. Acta Psychiatrica Scandinavica, 125(6), 440-452.

Secher, R. G., Hjorthøj, C. R., Austin, S. F., Thorup, A., Jeppesen, P., Mors, O., & Nordentoft, M. (2014). Ten-year follow-up of the OPUS specialized early intervention trial for patients with a first episode of psychosis. Schizophrenia Bulletin, sbu155.

Sells, D. J., Stayner, D. A., & Davidson, L. (2004). Recovering the self in schizophrenia: An integrative review of qualitative studies. Psychiatric Quarterly, 75(1), 87-97.

Thomas, N., Hayward, M., Peters, E., van der Gaag, M., Bentall, R. P., Jenner, J., … & McCarthy-Jones, S. (2014). Psychological therapies for auditory hallucinations (voices): Current status and key directions for future research. Schizophrenia Bulletin, 40(Suppl), S202-S212.

Thompson, K. N., McGorry, P. D., & Harrigan, S. M. (2003). Recovery style and outcome in first-episode psychosis. Schizophrenia Research, 62(1), 31-36.

Van Os, J., Rutten, B. P., & Poulton, R. (2008). Gene-environment interactions in schizophrenia: review of epidemiological findings and future directions. Schizophrenia Bulletin, 34(6), 1066.

Varese, F., Smeets, F., Drukker, M., Lieverse, R., Lataster, T., Viechtbauer, W., … & Bentall, R. P. (2012). Childhood adversities increase the risk of psychosis: a meta-analysis of patient-control, prospective-and cross-sectional cohort studies. Schizophrenia Bulletin, 38(4), 661-671.

Online Meeting, “An Introduction to the Hearing Voices Network”

What really happens within hearing voices groups?  How are they different than what happens in most mental health groups? Wgroup-therapy-1hat is the Hearing Voices Network up to in the USA, and how is it acting to spread this new model of support?

You will be able to get answers to questions
like this, and others like it, at the next online meeting/webinar of ISPS-US, which takes place on Wednesday August 19, at 3 PM Eastern Daylight Time, or noon Pacific Daylight Time.

Here’s the full description:

ISPS-US Online Meeting, “An Introduction to the Hearing Voices Network”

The Hearing Voices Network (HVN) is o
ver 25 years old and has chapters around the world in 26+ countries. It represents a partnership between individuals who hear voices or have other extreme or unusual experiences, professionals and allies in the community, all of whom are working together to change the assumptions made about these phenomenon and create supports, learning and healing opportunities for people across the country.  Founded around the philosophy that those who hear voices, see visions and/or have other unusual experiences are not necessarily experiencing a symptom of illness, HVN groups create opportunities for people to discuss what happens for them in a non-judgmental environment that supports the process of making meaning and learning to walk through the world as a voice hearer. Spend an hour with Lisa Forestell and Marty Hadge, both voice hearers, as they introduce you to the history and values of the Hearing Voices movement. Perhaps, by the conclusion, you’ll want to get involved too!

About the presenters:

Lisa Forestell is a Director w
ith the WMass Recovery Learning Community (RLC). She is a voice hearer, an HVN facilitator, train-the-trainer, and a member of HVN-USA Board of Directors dedicated to bringing HVN to the US. A staunch ally and peer to all those who choose their own life path regardless, in spite of and because of the obstacles they have faced.

Marty Hadge after years of receiving traditional mental health treatment, including multiple psychiatric hospitalizations, has found meaning and value to the experience of hearing voices and other extreme states through the healing environment of the Western Mass Recovery Learning Community and Hearing Voice groups. Marty is a trainer for the HVN USA. He was a Key Note Speaker at 2113 Alternatives Conference and currently works as a Community Bridger for the Western Mass Recovery Learning Community.

ISPS online meetings are free to ISPS members, with a donation of $5-$20 requested from others, though no one turned away for lack of funds.  Please do register if you want to attend, use this link:  https://introtohvn.eventbrite.com